In 2019 we shared that our son Cole has a rare genetic disorder called Costeff Syndrome which causes gross motor development issues. You helped us raise funds for a specialized trike so he could be more mobile.
We’re again asking for help as we’ve met more families in the USA that have children that are affected by this disease. Through these connections we’ve found a doctor in Israel that is willing to begin research on this disease at Sheba Medical Center. Sheba has a special interest in this disease as it was discovered by one of their very own doctors.
Your donation means this potentially lifesaving research can begin. We appreciate any support you can give.
